Introduce newborn screening for Spinal Muscular Atrophy in the UK immediately.

Introduce newborn screening for Spinal Muscular Atrophy in the UK immediately. — 6 signatures. Status: rejected.

Petition background

There are three treatments currently available for Spinal Muscular Atrophy on the NHS. All require treatment to commence prior to symptoms commencing in order to achieve the best outcome.

Additional details

The National Screening Committee reviewed ‘real world data’ and suggested the introduction of screening would save 2.9 babies lives a year.

View this petition on the official UK Parliament website

Other UK Parliament petitions

• Hold a referendum to bring the water industry into public ownership — 210,924 signatures
• Legislate to ban FPNs and prosecutions related to school attendance — 135,053 signatures
• Hold a UK-wide briefing on climate and nature risks — 123,819 signatures
• Change surrogacy law to recognise intended parents from birth — 113,200 signatures
• Support the Ceramics Industry and protect British manufacturing jobs and skills — 111,044 signatures
• Remove sentence reductions for guilty pleas in controlling and coercive cases — 105,588 signatures
• Fund NHS access to Omaveloxolone for patients with Friedreich's Ataxia — 102,394 signatures
• Raise the personal tax allowance to £18,000 — 72,554 signatures

Browse UK petitions

• Open petitions
• Trending petitions
• Petitions with a debate scheduled
• Petitions debated in Parliament
• Petitions awaiting a government response
• Petitions with a government response
• Closed petitions
• Rejected petitions
• Petitions by constituency
• Signature milestones
• Insights and analysis
• Frequently asked questions
• About UK Petition Tracker
• Terms of use
• What's new on UK Petition Tracker

UK Petition Tracker home